|
|
Post by theironyuppie on Dec 1, 2017 4:16:14 GMT -5
|
|
Ultimo Gallos
Grimlock
Dreams SUCK!Nightmares live FOREVER!
Posts: 14,419 
|
Post by Ultimo Gallos on Dec 1, 2017 11:30:39 GMT -5
Just read it and it was very touching. I think I have mentioned to you my buddy Tory. He was born legally blind. Was told he would be totally blind by the time he was 18. Thankfully he got a good doctor and now is 45 and just legally blind.
He loves to read,mostly comic books. And has to use a magnifying device to read them. Most years him and his girlfriend goto either Wrestlemania or Summerslam.
Years ago after I got to know him I asked him how well he could see. "People are just blobs, I can tell when it is you knocking at my door cause of your height and even though I am legally blind I can see you are as hairy as a wookie."
|
|
|
|
Post by theironyuppie on Dec 2, 2017 1:43:27 GMT -5
Just read it and it was very touching. I think I have mentioned to you my buddy Tory. He was born legally blind. Was told he would be totally blind by the time he was 18. Thankfully he got a good doctor and now is 45 and just legally blind. He loves to read,mostly comic books. And has to use a magnifying device to read them. Most years him and his girlfriend goto either Wrestlemania or Summerslam. Years ago after I got to know him I asked him how well he could see. "People are just blobs, I can tell when it is you knocking at my door cause of your height and even though I am legally blind I can see you are as hairy as a wookie." Thank you! I'm glad that Tory sounds like he's in good spirits, I like that attitude. |
|
|
|
Post by Long A, Short A on Dec 2, 2017 6:30:52 GMT -5
I'm glad I took the time to read your piece. I'm legally blind, but living in a north American city gave me a different perspective. I'm very thankful there were organizations that provided tech to help blind and visually impaired people. Shoot, the American Printing House for the Blind was right around the corner from one of the elementary schools I went to. I'm also glad I went to programs that helped kids like us learn daily life skills.
|
|
|
|
Post by theironyuppie on Dec 2, 2017 9:29:13 GMT -5
I'm glad I took the time to read your piece. I'm legally blind, but living in a north American city gave me a different perspective. I'm very thankful there were organizations that provided tech to help blind and visually impaired people. Shoot, the American Printing House for the Blind was right around the corner from one of the elementary schools I went to. I'm also glad I went to programs that helped kids like us learn daily life skills. Thank you for your comments, that's all interesting. Cool to know I'm not the only legally blind person here.  What technology did they provide? |
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Dec 2, 2017 11:18:16 GMT -5
My eyes get blurry and after years of reading in the dark with a lamp, I'm down to reading glasses.
I really should get real glasses as I corrective eye surgery 26 years ago on my right eye.
My right eye is almost nothing.
|
|
Gecko
Grimlock
FAN Pyrite Member. Muahahaha
Posts: 13,297
|
Post by Gecko on Dec 2, 2017 11:26:52 GMT -5
One of the things that I always think about when hearing about somebody living with a condition or disability is: The major obstacles and difficulties are obvious, but what are some of the little things that can cause problems that people might not think of?
|
|
wakko
Samurai Cop
Knows This
BAAAGH!!!!
Posts: 2,212
|
Post by wakko on Dec 2, 2017 14:34:35 GMT -5
As a fellow legally blind person, I say hello and welcome. |
|
wakko
Samurai Cop
Knows This
BAAAGH!!!!
Posts: 2,212
|
Post by wakko on Dec 2, 2017 14:36:34 GMT -5
One of the things that I always think about when hearing about somebody living with a condition or disability is: The major obstacles and difficulties are obvious, but what are some of the little things that can cause problems that people might not think of? For me it's things like reading the degrees on the oven heater, how hot it is so to speak. Microwave, thermostat, etc. And forbid I drop something in the kitchen that may be small, gone for good. |
|
|
|
Post by Long A, Short A on Dec 2, 2017 19:55:16 GMT -5
I went to school in the 80's and 90's, so most of my assistive aids were pretty low tech. I was introduced to computers earlier than my sighted peers do to text-to-speech programs. My teachers also noticed I kept pace with my class when I typed instead of writing. I use many different magnifiers including one that clipped on a computer screen. Speaking of low tech: I always went to school with resource rooms for blind and visually impaired kids. You spent an hour a day getting your work enlarged, doing study hall type things and learning how to use assistive gadget and tech. My teachers could never help me get the hang of visualtechs...
|
|
lodirulz
Hank Scorpio
Live as the color red in a world of black and white.
Posts: 6,412
|
Post by lodirulz on Dec 2, 2017 20:38:58 GMT -5
I have a little bit of history myself, though not as severe. During an eye appointment a few years ago, I was diagnosed with Dry Eye Syndrome, and was told that my case meant I was at an increased risk for glaucoma. Thankfully, the items that were prescribed to me did the trick, and the very next year, I was told that my risk level lowered significantly over that years time.
However, my best friend who I met in college is legally blind due to Macular Degeneration, and thats so hard for me to ever think about.
So I'd like to thank you for sharing stories like this. Its perspectives like these that really ease my mind.
|
|
|
|
Post by theironyuppie on Dec 3, 2017 7:58:51 GMT -5
As a fellow legally blind person, I say hello and welcome. Thanks for the welcome! |
|
Dr. T is an alien
Patti Mayonnaise
Knows when to hold them, knows when to fold them
I've been found out!
Posts: 31,360
Member is Online
|
Post by Dr. T is an alien on Dec 3, 2017 14:34:47 GMT -5
It’s stories like yours that makes me refuse to even get a handicap tag even though my Bethlem’s Myopathy means I can get it. I am acutely aware that others need those parking spots more than me (I still can walk on my own and only use an ankle brace for support) and I do not want to be tempted. Eventually I would use a spot that someone worse off than me would need.
|
|
|
|
Post by theironyuppie on Dec 4, 2017 5:27:54 GMT -5
It’s stories like yours that makes me refuse to even get a handicap tag even though my Bethlem’s Myopathy means I can get it. I am acutely aware that others need those parking spots more than me (I still can walk on my own and only use an ankle brace for support) and I do not want to be tempted. Eventually I would use a spot that someone worse off than me would need. That's very noble of you. |
|
Dr. T is an alien
Patti Mayonnaise
Knows when to hold them, knows when to fold them
I've been found out!
Posts: 31,360
Member is Online
|
Post by Dr. T is an alien on Dec 5, 2017 3:18:26 GMT -5
It’s stories like yours that makes me refuse to even get a handicap tag even though my Bethlem’s Myopathy means I can get it. I am acutely aware that others need those parking spots more than me (I still can walk on my own and only use an ankle brace for support) and I do not want to be tempted. Eventually I would use a spot that someone worse off than me would need. That's very noble of you. Honestly, I don’t think of it as that big a deal. I can walk without any aids and it usually is relatively pain free. So long as I can avoid stairs (the bane of my existence), I don’t see a problem with walking. There may be days that I feel differently, but those are few and far between. |
|
|
|
Post by theironyuppie on Dec 9, 2017 9:10:06 GMT -5
That's very noble of you. Honestly, I don’t think of it as that big a deal. I can walk without any aids and it usually is relatively pain free. So long as I can avoid stairs (the bane of my existence), I don’t see a problem with walking. There may be days that I feel differently, but those are few and far between. Of course, but I think it is a big deal, especially compared to some. |
|
|
|
Post by edgestar on Dec 9, 2017 17:09:48 GMT -5
I am not blind, but I was born with hydrocephalus. I have a shunt. I have seizures, and am technically disabled, but I try to make the best of it. I have been told that I can have surgery to help stop the seizures, but some of the risks are paralysis or strokes. With that, sometimes I think I would be okay with just taking my medicines.
Your story is very inspiring, and I hope for the best for you.
|
|
jagilki
Patti Mayonnaise
Nobody notices him; No, we noticed him
f*** Cancer
Posts: 33,594
|
Post by jagilki on Dec 9, 2017 17:24:21 GMT -5
I'm not sure exactly what condition my cousin has. He's legally blind. From what I understand he can't see directly in front of him, but can see some things from his peripheral vision.
He's a tough case to look at from the outside. He refused to use any of the visual aides and such school provided for him. He had glasses, but refused to ever try them. He went to a School for the Blind for a while, but (apparently, once again being outside the situation and not knowing all details) didn't take any advantage of it.
Besides his vision, he's always had behavioral problems. He was picked on at school, but he reciprocated most of it.
Either way, like I said it was tough. You could see his struggle with certain things, but since he'd refuse most help, you just couldn't do anything.
On to myself. I had a below knee amputation a few years ago. (this was after losing a toe on the other foot before that). However it took me about a year to get on Medicaid and be able to get a prosthetic. Spending almost a year in a wheelchair opened my eyes. Before, I was always aware of when there were people around me in stores that needed me to move out of the way. It was just how I was raised. In the wheelchair, it surprised me how many people seem to not even notice you.
Either way. I'm not sure where the hell I'm going with this post.
|
|
|
|
Post by theironyuppie on Jan 7, 2018 4:29:27 GMT -5
I'm not sure exactly what condition my cousin has. He's legally blind. From what I understand he can't see directly in front of him, but can see some things from his peripheral vision. He's a tough case to look at from the outside. He refused to use any of the visual aides and such school provided for him. He had glasses, but refused to ever try them. He went to a School for the Blind for a while, but (apparently, once again being outside the situation and not knowing all details) didn't take any advantage of it. Besides his vision, he's always had behavioral problems. He was picked on at school, but he reciprocated most of it. Either way, like I said it was tough. You could see his struggle with certain things, but since he'd refuse most help, you just couldn't do anything. On to myself. I had a below knee amputation a few years ago. (this was after losing a toe on the other foot before that). However it took me about a year to get on Medicaid and be able to get a prosthetic. Spending almost a year in a wheelchair opened my eyes. Before, I was always aware of when there were people around me in stores that needed me to move out of the way. It was just how I was raised. In the wheelchair, it surprised me how many people seem to not even notice you. Either way. I'm not sure where the hell I'm going with this post. There's a lot of complexity, sure, and sometimes its very easy to feel ashamed of being disabled, and not want to make it more obvious to others. I'm sure it was very frustrating seeing his refusal of most help, but its a hard situation.  Speaking of, my own situation still hasn't been the best, alas, I wish it was going better. The NDIS expects me to get an expensive laptop, which they may or may not reimburse, and either way, I'm meant to spend the thousands of dollars on it myself. |
|
Kyn
Don Corleone
Posts: 1,623
|
Post by Kyn on Jan 7, 2018 9:20:08 GMT -5
Thank you for sharing this. It made me wonder, when dealing with businesses like banks & so forth, do you find them accomodating to deal with? Are there any changes that would make life easier for you? (I've always wondered about things like ATM's, for instance.)
|
|
What technology did they provide?
Speaking of, my own situation still hasn't been the best, alas, I wish it was going better. The NDIS expects me to get an expensive laptop, which they may or may not reimburse, and either way, I'm meant to spend the thousands of dollars on it myself. 